sexism

Samantha Jones

I recently read an interesting quote by Kim Cattrall. She spoke out about Samantha Jones’s cancer plot in the Sex and the city script. She was against it, because she said it perpetuated the idea that women who are comfortable and free with their sexuality must in some way be punished for it.

If you haven’t watched the show, the character Samantha Jones is basically the female version of a playboy and later in the show, she is diagnosed with breast cancer.

When I was young, I only had crushes on safe, unavailable guys. I was a gangly, nerdy girl with braces and glasses, so it was easy to blend into the background. But when I traded my glasses for contacts, lost the braces, and transformed into a young woman with hips and boobs, suddenly I wasn’t invisible to the unavailable people I had quietly adored. This attention was exciting, scary, and dangerous. I didn’t understand what it meant, but it felt like it was my fault and entirely in my control. I was forced into an impossible puzzle, where I couldn’t feel empowered, safe, and free at the same time. I had to choose.

I made a lot of mistakes after that, and when I got sick, I was convinced that I was being punished for them. This mindset is not something I got out of thin air, it is some Scarlett letter bullshit that is still very loud in our society. If a woman is hit on, whether she wants it or not, it’s something that she brought on, like a siren, voodoo witch temptress luring in helpless men.

I was put in the position to field advances by almost every single man that I trusted in my life, including every close friend of my boyfriend and partner of my friends. And if I didn’t, I had to take on the shame for what did and didn’t happen. And I had to lose friends and gain a reputation, while the men lost nothing. So, for a while, it made sense to me that I would be the only one who got sick. Because my actions, and even just my existence, was the only part of this equation being called into question.

When I read that quote by Kim Cattrall, it all clicked. I am not being punished, I am just sick. We exist in this complex system of bacteria, plants, animals, and people. 1/3 of the world’s population have multiple chronic illnesses and they aren’t all demon spawn getting punished for something they did. And the other 2/3 are not angels. The way we fit into this puzzle is something none of us actually understand, even if we long to.

There are people out there who think that I got what I deserve, but I don’t want to be one of them anymore. I create artwork so I can celebrate my disabled body and empower it again, so I refuse to believe it is to blame. I am working too hard to love it. I want to be Samantha. Samantha was free and uninhibited. Samantha was powerful and confident. And Samantha owned her mistakes, because that is such an important part of being truly free.

Yes Samantha Jones is fictional, but the mentality of being an empowered, safe and free woman should be alive and well. If we don’t believe that it can exist, it never will.

Hysteria

My guy friend was excited to announce that he’s getting the same weird medical test done that I am (again) next week. This test is a doozy. You have to have what I will describe as a reverse enema while you lay on a table, bum exposed to the room, before that table is raised up so you slide down so so slowly onto a toilet that ends its journey elevated in the center of the room so that you can go to the bathroom above the other peasants (nurses and doctor) like a king. The radiologist takes pictures of you (well, your insides) and then comes in to talk to you about it and point at a screen, while you sit Winnie-the pooh-style on your thrown. Over 10/10 strangest thing I have ever done in my life, but the only reason I was able to get a surgery that changed my life, so I’m a fan. I need the test again, because eventhough the first surgery worked, I may need another surgery to help seal the deal.

At first I laughed to myself, because my friend will soon understand what is still out of the thousands of medical experiences I have had, the weirdest one, but then I realized that he started having chronic health issues about 6 months ago and he is already having several tests done that took me between 3-5 years to get.

That test in particular took me an absolutely gut-wrenching amount of fighting, pleading, begging, and getting tossed from one doctor, surgeon, specialist, and physical therapist to the next for years to get done and it was given to him as easily as a credit card with one phone call to his doctor.

My friend talked about his fear of eating and awkwardness of social interactions with an extremely limited diet, chronic pain, isolation, and well-meaning but incompetent doctors. It was all very familiar to me. I tried to offer advice when he asked and said “I have found that I have had to go against my personality to get good care. I have to complain and really emphasize what is wrong”.

It was his response that made me realize that his experience was not familiar to me at all. He was beginning a journey that he thought was like the one I started years ago, but it was entirely different. He hasn’t had to emphasize his pain or complain. He hasn’t had to push, beg, or plead. He hasn’t had anyone wonder if he is really sick physically or question if it is just his mental health or anxiety. Or possibly just a stressful relationship causing inner turmoil.

It hasn’t been perfect, but his doctors listen to him.

And as he tried to empathize about our shared experience, I felt miles away.